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Up to 50% of all children have undiagnosed seizure disorders, to a great extent because they are difficult to diagnose and due to a lack of awareness and understanding. Caren Haines, with renowned behavioral child neurologist Nancy Minshew, MD, is determined to change that. At age two, author Caren Haines' son was diagnosed with autism. By the time he was 12, his diagnosis didn't account for his uncontrollable aggression, the acrid smells that lingered in his mind and the odd voices that screamed at him from inside his head. By the time he was 18, his out-of-control behavior mirrored a mood disorder with psychotic features. Silently Seizing begins with a close-up look at this family's journey and examines a disorder that cannot always be identified in a clinical setting. Intersecting at two medical sub-specialties, neurology and psychiatry, the child who has autism and partial seizures is at a serious disadvantage. By inadvertently allowing children's brains to "silently seize," we are robbing children of their ability to function normally. When treated early with anti-seizure medications, many children show amazing gains in expressive language and comprehension. Many begin to speak and learn as many troubling behaviors begin to disappear. Even more important, many children lose their diagnosis of autism. Backed by up-to-the-minute research, this must-read book includes sections on what autism is, the seizure-autism connection, tips for diagnosing and treating seizures, as well as how to better understand children's behavior.
- Sales Rank: #280248 in eBooks
- Published on: 2012-08-27
- Released on: 2012-08-27
- Format: Kindle eBook
Review
As a board-certified behavior analyst who works with children with autism as well as being a mother to a teen with autism and a recently diagnosed seizure disorder, Caren Haine's book has been my guide book both in working with my students and getting my son diagnosed. The information has enabled me to provide additional supports to my students and my son in an area in which the medical community is far behind the cutting-edge research Caren shares. The format is very accessible breaking down a complex topic into very comprehensible parts using understandable language. --Tricia Polchowski, MEd, board-certified behavior analyst
Just as we parents are getting comfortable with the diagnosis of autism comes the fear of seizures. And sometimes it arrives at a time when puberty is starting to change what little consistency and control we had over this turbulent disorder in our child. Could the behaviors that we see be attributable to seizure activity? How will we know and what can we as parents do about it? This book, Silently Seizing, answers those questions and more. This is the 'go-to' guide every parent needs to read, to be referred to again and again. The family stories that are sprinkled throughout are both heart-wrenching and encouraging to read, especially for fellow parents. I refer to this book often when speaking to groups and consulting with parents and professionals. --Sally J. Colletti, BSW
Silently Seizing introduces the complex topic of seizures and autism in a manner that parents can understand. After reading this book, parents will be able to glimpse into their child's confusing world, and have yet another tool to help the child escape from it. I find addressing EEG changes very helpful in caring for children with autism in my office, and hope this book will encourage families and doctors to begin the journey themselves. --Ali Carine, DO, FAAP, C-OMM/NMM
Just as we parents are getting comfortable with the diagnosis of autism comes the fear of seizures. And sometimes it arrives at a time when puberty is starting to change what little consistency and control we had over this turbulent disorder in our child. Could the behaviors that we see be attributable to seizure activity? How will we know and what can we as parents do about it? This book, Silently Seizing, answers those questions and more. This is the 'go-to' guide every parent needs to read, to be referred to again and again. The family stories that are sprinkled throughout are both heart-wrenching and encouraging to read, especially for fellow parents. I refer to this book often when speaking to groups and consulting with parents and professionals. --Sally J. Colletti, BSW
Silently Seizing introduces the complex topic of seizures and autism in a manner that parents can understand. After reading this book, parents will be able to glimpse into their child's confusing world, and have yet another tool to help the child escape from it. I find addressing EEG changes very helpful in caring for children with autism in my office, and hope this book will encourage families and doctors to begin the journey themselves. --Ali Carine, DO, FAAP, C-OMM/NMM
About the Author
Caren Haines is the mother of a 24-year-old son diagnosed with autism as a young child. As a registered nurse, Caren relied upon her nurse's training to assist her in deciphering the origins of many of her son's perplexing behaviors. Based on knowledge gained from years of intensive research she compiled for this book; as well as, information provided by top researchers in the field of autism, Caren is helping families become free from the debilitating symptoms of silent seizures and psychosis. She is also co-author of a children's book, Georgie, The Flying Dog, which explores the concept of unconditional love and acceptance of our differences.
Most helpful customer reviews
10 of 10 people found the following review helpful.
Review of Silently Seizing by Caren Haines, RN
By Judy Endow
As an autism consultant to school districts and organizations on behalf of those with autism this book has been an eye-openner to me! This well researched and written text with the added documentation by Nancy Minshew, a leading researcher in the autism field, is very much appreciated. Regardless of how many FBAs we do in our schools and clinics, if silent seizures are at the root of the behavior, the behavior won't be significantly impacted until the seizures are addressed through the proper medication.
Thanks to Caren Haines for weaving together autism, neurology, psychiatry and research in an academic, yet practical manner to create this book - important for those in the field of autism and written in a way that anyone interested can easily understand!
Book Chapters:
1. Josh's Story
2. What Autism Is...and Is Not
3. Common Genetic Disorders Found In Both Autism and Epilepsy
4. What Are Brain Seizures?
5. Recognizing Silent - or Partial - Seizures
6. Diagnosing and Treating Seizures and Co-Occuring Conditions
7. Neurofeedback and Other Promising Treatments
8. Family Stories
9. A Psychiatrist's View
9 of 9 people found the following review helpful.
Finally found out what was wrong with me!
By Ciré
I have gone misdiagnosed for years! I went to see a neurologist and I'm on the right medication for my 'Silent Seizures'. Feel so much better and I'm much more productive. My only problem with this book is that the stories become more and more dramatic so quickly. More space should have been allotted for the more subtle cases because this book can scare those who have these seizures unnecessarily and relatives who read the book hoping for a clearer understanding can begin to think the worst is coming. Four stars for the help, but for those who have these seizures calm down and let the medical community be your guide. The younger neurologists understand these seizures and their are many new medications available. Go for it. Get the help you need and deserve!
6 of 6 people found the following review helpful.
A must-read if you have a child on the autistic spectrum
By adele
This is an obviously well researched book coupled with personal experience. The input by Nancy Minshew, MD has been invaluable to the accuracy of the information.
Silent Seizures are not only silent in the respect that they are difficult to detect, diagnose and recognise but `silent' also in the respect that so few people are aware of this possible aspect of autism.
Not every autistic child will have silent seizures but there are many that probably do and don't even know that this is the cause of some of their behaviours.
I found this book extremely interesting and enlightening and am investigating further to see if this could be a possible explanation for some of my own son's unpredictable violent outbursts.
The information is presented clearly and methodically and although it is a complicated subject it is explained in a manner that is very easy to understand, I commend Caren for doing an excellent job of making this book easy to understand and apply.
The personal touches and inclusion of her own son's experiences along with other family stories helps to make this informative book not to become a dry instructional manual but a true pleasure to read.
Disclaimer: I received a free copy of this book in exchange for an honest review.
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